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Fibromyalgia and how it effects you and what to do to help naturaly and otherwise to help!

Merry Meet,Im Cynthia Moondragon and I have fibromyalgia and I want to discuss many ways on how to help with the pain of fibro.,and if you have ways that help please get involed let me know what you do...
1)I know that swimming is a great thing to help,it helps by keeping the pressure off your joints and muscles.
2)Keep excersiing..keep it lite yoga is a great thing or anything that is best for you but keep moving because the momet you stop moving you will regret it it will get worse the pain will be worse and unbearable. this i learned from expearence due to complications with my doctors(long storybut trust me keep moving even if a lil bit)
3)use herbs that help if your doc says its ok to mix with your meds make sure you ask him/her first..this is open for discussion there is so many things that help with this what works for you?
4)make your self some natural massage oils( this is also open for discussion on what you think is the best for muscle aches pains)
5)bath salts are great for relaxing for too much pain and too much stress(make some of your own make it all natural its better for you and wont cause female problems..(discussion also open for what your fav scents and combos are for this also)

Tags: fibromyalgia

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Replies to This Discussion

Permalink Reply by Milli (Millicent Purae Omallia) on January 7, 2010 at 3:25am

I was also on Topomax. I'm currently taking Inderal. However, it's no longer working like it once did. I take Relpax and Vicodin. Lately, I've found I've needed more. I have found, though, peppermint and dark chocolate to be very helpful.

Permalink Reply by Jennifer Surdam on January 7, 2010 at 6:18pm

To both Millicent and Crescent,
Thanks for your input! The topamax has helped to a point. But unfortunately, it seems like everything I go on works for a time, and then it sorta slacks off or just simply stops working. IDK what's up, it could be the Lyme disease or something, IDK, but something is keeping me from getting relief, and I'm back to having near-daily migraines! I've tried all the tryptans, including Relpax, and nothing stops the migraines once they are in full-swing, or even starting, except for DHE injections. I've tried fioricet, fiori-something else (LOL), vicodin/valium combo (up to max available dosage), tryptans (all of them!), and even percocet. IDK what else to do. I've tried to get approved for Botox injections, but my insurance won't approve it, so I'm trying to see if I can do appeal on it, or if I can get rhizotomy (cautization of the nerves). DHE injections will likely stop working. Inderol I took as a child, then tried again as an adult, but it exacerbated my asthma, so I had to stop it pretty quickly! I mean, my poor neuro, he's tried everything with me, and I feel bad cuz IDK what else to tell him, and he doesn't know what else to do with me!
Ugh... Life sucks sometimes, eh, girls?

Hugs and BB,
jen :)

Permalink Reply by Lady Livvi on January 5, 2010 at 8:07am

Hello everyone
It's a dubious honour to qualify as a member of this group, but qualify I do - I have Multiple Sclerosis and severe lower spinal damage and am basically in a chair whenever I go out. Like those with Fibromyalgia, chronic pain is also something I experience.

As a Herbalist I have treated many people for chronic pain conditions with some success. Each person should receive some professional assessment before beginning a course of herbal treatment to cater for unique needs and possible drug interractions, but the mix I have found very effective is

Gingko (Gingko biloba) to improve circulation and ease some of the pain in the long muscles
Scullcap (Scutellaria augustifolia) as a muscle relaxant and general nerve tonic
Dandelion (Taraxacum officinale) as a body detoxifier to aid overall toxin elimination
Ginger (Zingiber officinalis) as a warming muscle support, also great for the nausea often accompanying pain
Marshmallow (Althea officinalis) as an immune stimulant and mild analgesic which will not interract with other analgesics

I won't always have answers to our problems (let's face it; I'd have cured my MS by now if I did) but I'm here to ask questions of at any time so please, ask away.

Many blessings.......... Livvi, Head of the Correllian Herbal Order

Permalink Reply by Jennifer Surdam on January 5, 2010 at 4:38pm

Hey Livvi,

That's incredible. I'm so glad to have you here. I'm sure that you can help so many of us! Good to see you. Thanks for being here!
Hugs and BB,
jen :)

Permalink Reply by BellaDonna Grimijser on January 5, 2010 at 4:46pm

How wonderful that you said what you said! I love your honesty. When you have the time would you please advise on how to use the marshmallow properly? This is an herb I've not used and would love to learn more about it. Thank you so much. ~belladonna ♥

Permalink Reply by Lady Livvi on January 6, 2010 at 9:09am

Hi Bella,

firstly, don't self medicate. Marshmallow is pretty gentle and I can't imagine it causing harm in any dose, but it is well to remember that all herbs carry within them an element of danger. As an example, your namesake plant, the beautiful Nightshade (Atropa belladonna) is useful herbally as a cardiac stimulant but is also so deadly that herbalists - who discovered its properties in the first place - are no longer permitted to prescribe it. A medicine derived from the plant, Atropine, is given to people with heart disease and also commonly used as a pre-anaesthesia drug.

Marshmallow root (the flowers and leaves are very rarely used for skin complaints) is used to treat a number of conditions. It is an anti-mucosal so it is excellent for coughs and cold, but it also eases inflammation in connective tissues which is why it is in my mix for chronic pain. The root is incredibly sweet and swells up when soaked in water - it was often given to children as a sweet and is the basis for the sugar confection we know today as marshmallows.

If you have any more questions please ask away.

Blessings ............... Livvi

Permalink Reply by Purple Hedgewitch on May 2, 2010 at 11:27am

Merry Meet Liv
It is an honor to be here isn't it? I am a huge Ginger fan any way I can get it. in the winter I even put about an 8th of a tsp of ground ginger in my hot chocolate. is that ever a great taste.. I love chocolate ginger pieces so this is an extension of that for me lol. 2 1/2 yrs ago when my sickness started. My Neurologist thought I had MS but after extensive tests and MRI they drew the conclusion it wasn't, it was the Sjogren's Syndrome. But my landlady has very early symptoms of MS at this point her balance is off if she gets up in the night and attempts to walk through the house without putting a light on. plus she has loss of sensation in her fingers. not complete loss just like when the feeling is coming back to your face after having freezing for a tooth extraction.
Brightest Blessings

Permalink Reply by Rev. Lady skydancer on June 11, 2010 at 6:41pm

Hi Ladies,

I'm a newbie - here today.I have Fibromyalgia, Temporal Mandibular Joint Dysfunction (TMJ) and Sj. Syndrome. They all started some 36yrs ago but I was only properly diagnosed 3-4 yrs ago. Before that I was diagnosed & treated for Sickle Cell Anaemia! After 30+ years of believing I had that I was retested by a different lab and the results were negative. I was then tested a third time and again it was negative. So then they had to find out what I did have. I saw a Rheumatic Specialist and after tests and a long discussion they knew it was 'all of the above'. I was pleased that I finally had an answer but dismayed at what it was. I am sure you all felt this way when finally diagnosed.

My first husband found it hard to deal with my constant aches & pains, and eventually we parted. His mental & physical abuse towards me would make my illness much worse, so my life was a constant vicious circle. I am now married to a lovely man. Before we married I told him about my illness and how it would affect our relationship so that he could back out before we went too far, but he loved me regardless. I feel quite blessed as he is a special guy in so many ways.

We both have children from our first marriages ages 30-36yrs, so they are all going through similar life lessons & issues. I do not work as I never know when I will be ill, or for how long. I did work as a volunteer with a charity for a year but found during the colder months I would be worse and could not work. I finally left as I had let them down too many times and it was not fair on them.

I am now a life member here and taking the 1st Degree Clergy course. I am already a 3* Gardnerian HP's, but wanted to join a larger group and do more study. I have performed many rituals, Hand Fasting, Baby Naming, and three journeys to the Summerlands. The last was my own HP with whom I lived with for 10yrs between my 2 (legal) marriages. he was also a great guy but much older than me. I prefer older men as they dont have all the 'ego' issues younger men have. They know who they are and no longer need to prove themselves as men.

I am a qualified Teacher & Psychotherapist. I have two students who are having lessons in Gard. Wica, and I counsel people on-line. I also read Tarot, have done for 30+ yrs, and I love making up magical herbs & powders.

I hope to learn here and to support others.

Blessings, Skydancer x

Permalink Reply by Purple Hedgewitch on June 11, 2010 at 10:44pm

Oh hun you have had a tough time of it haven't you? I have Fibromyalgia,Sjogren's Syndrome among other chronic conditions. but I get TMJ when I'm stressed as I clench my teeth also grind them when I'm stressed which starts my jaw clicking just on the left side. I've been having a lot of flair ups this last while..
Love and Light

Permalink Reply by Rev. Lady skydancer on July 6, 2010 at 3:16pm

Hi Guys, Its been quiet on here for a while. Don't tell me we have all been cured over night! I certainly have not. We went for a romantic meal out on Sat night and had a great time, then I cooked a big dinner on Sunday. It was lovely doing normal things again after so long. Then on Monday morning I woke in pain all over, even down to my toes. I've been that way since, despite pain killers and plenty of liquids, and sleep. I've been dropping off every 2-3 hrs, sleeping for a while, then up again. I feel drained.

Sometimes its hard just accepting our illnesses as we so want to be normal and join in with those around us. Sigh....

Permalink Reply by Hope Dreams Free on February 5, 2011 at 4:36pm